HO Calvin N.
Calvin N. Ho, PhD, is the Science Project Coordinator at the Tuberous Sclerosis Alliance (TS Alliance), the patient advocacy organization for tuberous sclerosis complex (TSC) in the United States. Dr. Ho organized the TS Alliance’s Externally-Led Patient-Focused Drug Development (ELPFDD) meeting with the US Food and Drug Administration (FDA). He also conducted the patient experience research behind the international drug development survey and Voice of the Patientreport that accompanied the meeting. The ELPFDD meeting, one of the first such meetings ever held, empowered patient advocates to tell FDA representatives about their experiences living with the disease. These data can inform regulators’ reviews of new treatments as well as drug and device companies’ development plans.
Dr. Ho received his PhD in sociology at the University of California, Los Angeles, where he studied how industry and civil society advocated for administrative policy changes in the US and Canada.