Dr. Erica Daina is a senior representative member of the Clinical Research Centre for Rare Diseases (CRCRD) established in 1992 in Italy, as part of the Mario Negri Institute for Pharmacological Research.
The Centre mission is to promote independent clinical research, particularly focussed on rare, genetic diseases. It has also developed as a clearinghouse of information to patients, families, physicians and health authorities, and has established one of the first helpline for patients in Italy. Since 2001 the CRCRD is the Coordinating Centre of the Regional Network for Rare Diseases in the Lombardy Region and it collaborates with the National Center for Rare Diseases, which is part of the Italian Istituto Superiore di Sanità.
Erica Daina got her degree in Medicine at the University of Milan in 1987 and the specialisation in Medical Nephrology in 1990. She performed her training at the II° Medical Division – San Raffaele Hospital – Milan, and at the Division of Nephrology and Dialysis – Riuniti Hospital – Bergamo. In 1991 she started her collaboration with the Mario Negri Institute and she got the specialization in Pharmacological Research.
1996 – 2009: Head, Information Center for Rare Diseases
June 2009 – present: Head, Laboratory of Rare Diseases Documentation and Research
January 2002 – present: Representative of Coordinating Centre – Regional Network for Rare Diseases.
She is involved in several national and international projects and collaborations in the field of public health issues and research in rare diseases.