Coordinator of the first multi-centric rare diseases survey granted by the Health-Research Division of the Argentina National Ministry of Health (MSN).
Author of several research and awareness articles on rare diseases and orphan drugs, published at Science, ActaPaediatrica, Rare Journal, among others, and including journalist articles.
Awarded by different patient institutions including EURORDIS (France, 2007), Crystal Children Organization (Panama, 2011), FEMEXER (Mexico, 2014), ICORD (Sweden 2015) and others.
Advisor/consultant for the development of Rare Diseases legislations in different countries (Argentina, Brazil, Columbia, Peru).
External Advisor of the Health Ministry at the Province of Buenos Airesfor the regulation of the Rare Diseases Law.
HTAi member (Health Technology Assessments International).