The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium, are glad to announce the RE(ACT) Congress 2020 and IRDiRC Conference, Berlin, Germany 11-14 March 2020. This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC Conference series (4th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives.
The RE(ACT) Congress – International Congress of Research on Rare and Orphan Diseases – was initiated in 2012 by the BLACKSWAN Foundation to create a forum for and promote scientific cooperation and research on rare and orphan diseases. IRDiRC – launched in April 2011 at the initiative of the European Commission and the US National Institutes of Health – fosters international collaboration on rare diseases research by bringing together researchers, funders and patient advocacy organizations that work in a collaborative manner within a multinational consortium.
The 6th edition of the Congress (held in Berlin, Germany, from 11-14 March 2019) will be co-organized in collaboration with the International Rare Diseases Research Consortium (IRDiRC) and the European Joint Program Rare Diseases (EJP RD) and in partnership with Eurordis (European alliance of patient organizations) and RDI – Rare Diseases International (global alliance of people living with a rare disease).
Registration will open in June 2020; please subscribe at our distribution list to be updated about the congress and our activities.
|Dr. Olivier Menzel
||Dr. Daria Julkowska
||Dr. Lucia Monaco
|Chairman and founder
||Consortium Assembly Chair