Welcome

The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium, will host the joint in-person event RE(ACT) Congress and IRDiRC Conference 2023 – 15-18 March in Berlin, at the Mélia Hotel.

This joint event continues the IRDiRC Conference series (5th edition) and the RE(ACT) Congress series (7th edition). It aims to bring together scientific leaders, experts, and young scientists from various breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations committed to research will also attend to share their experiences and perspectives.

The RE(ACT) Congress – International Congress of Research on Rare and Orphan Diseases – was initiated in 2012 by the BLACKSWAN Foundation to create a forum for and promote scientific cooperation and research on rare and orphan diseases. IRDiRC – launched in April 2011 at the initiative of the European Commission and the US National Institutes of Health – fosters international collaboration on rare disease research by bringing together researchers, funders, and patient advocacy organizations that work collaboratively within a multinational consortium.

The joint edition of the 7th edition of the RE(ACT) Congress and the 5th IRDiRC Conference from 15-18 March 2023 in Berlin will be organized in collaboration with the European Joint Program Rare Diseases (EJP RD) and in partnership with Eurordis (European alliance of patient organizations) and RDI – Rare Diseases International (the global alliance of people living with a rare disease).

On behalf of the Organizing Committee for the RE(ACT) Congress and IRDiRC Conference 2023: