CIOFFI Gina

An experienced advocate for people living with rare diseases, Gina served 7 years working as a legislative staffer in the US Congress before joining Cooley’s Anemia (Thalassemia) Foundation as National Executive Director where she drove initiatives to raise disease awareness, drive science and expand partnerships with stakeholders for more than 16 years. Gina then moved to industry as Head of Patient Advocacy and Communications for ApoPharma, and now serves as US Public Affairs Lead for Global Rare Diseases at Chiesi Group. She holds a bachelor’s degree in the Great Books from Saint Mary’s College of California and a J.D. from The Catholic University of America, Columbus School of Law and is a retired member of the New Jersey Bar.