RANDALL Lindsay

Lindsay Randall graduated as a Children’s Nurse in 2013, after 10 years in the property market. She worked at the Evelina London tertiary children’s hospital across orthopaedics, neurology, cardiology and surgery, before taking on the role of Clinical Educator for Paediatric Surgery. In 2018, Lindsay’s first child, age 2, was diagnosed with ultra rare condition SLC6A1 Developmental and Epileptic Encephalopathy. Lindsay founded Arthur’s Quest in 2019, a UK registered non-profit, raising awareness and funds to support advancing research and developments for this disease. Lindsay relocated to her local DGH to be closer to home, working in the role of Paediatric Practice Development Nurse at MTW, Kent. She is currently completing a PG Cert in Leading Practice Education.

In 2019, having tested negative for the SLC6A1 mutation, Lindsay and her husband welcomed their second child into the world, but SLC6A1 was not finished with them, and against all odds, their daughter was diagnosed in 2020 following increasing seizure activity. Arthur’s Quest, is part of a global network of parent run organisations that work as a consortium of highly motivated CEO’s and Trustee’s, sharing ideas, progress, research initiatives and resources. They connect patients and families, clinicians, researchers, scientists, drug makers, funders and umbrella organisations with the primary focus of advancing translational science to treat this disease. Last year the organisation officially dual registered to include the name SLC6A1 Connect UK, in line with global partners, with a new web address www.slc6a1connectuk-aq.org.