WANG Mary

Mary Wang is the Patient Engagement Director at Genespire, ensuring that the perspectives of people living with rare diseases (PLWRD) inform the development of advanced therapies. She previously served as Global Programme Director at Rare Diseases International (RDI), the international alliance of PLWRD, and led projects on essential medicines, holistic care, quality of life framework, and technical collaboration with the World Health Organization. Prior to RDI, Mary was the Global Partnership Manager at Fondazione Telethon in Italy. With over 15 years’ experience in rare disease research and policy, she has advanced biobank networking, data-sharing initiatives, and training programmes for both scientist and patients. She is a member of the Interdisciplinary Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC). Mary holds a PhD in Cell Biology from University College London, UK.