Welcome

Welcome to RE(ACT) – Rare Disease Research Congress, the flagship event in rare disease research organized by the BLACKSWAN Foundation. From March 10–12, 2027, we will gather in Budapest for three days of inspiring science, meaningful dialogue, and cross-sector collaboration.

Building on the legacy of the RE(ACT) Congress series (now reaching its ninth edition), RE(ACT) continues to serve as a meeting point for scientific innovation and real-world impact. The Congress brings together international leaders, renowned experts, and emerging talents from across disciplines to share breakthrough results, challenge ideas, and help shape the research and policy landscape that will accelerate progress in rare diseases.

True to the spirit of RE(ACT), patients, families, and advocacy organizations are integral to the Congress. Their lived experience strengthens discussions, grounds priorities in unmet needs, and helps ensure that research advances translate into tangible benefits for people living with rare diseases.

Since its launch in 2012, RE(ACT), initiated by the BLACKSWAN Foundation, has fostered scientific exchange and catalyzed collaboration in rare and orphan diseases. In partnership with the European Rare Diseases Research Alliance (ERDERA),  the International Rare Diseases Research Consortium (IRDiRC) , and EURORDIS (the European Alliance of Patient Organisations), RE(ACT) embodies a shared commitment to overcoming rare disease challenges through collective action, open collaboration, and knowledge-sharing.

Join us in Budapest as we advance discovery, strengthen partnerships, and build momentum toward a future where rare diseases are no longer barriers—but frontiers we can overcome, together.

Registration will open in April. Join our distribution list to stay informed and receive special discounts.